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Thread: OT - Lymphangioleiomysomatosis

  1. #1
    Cheryl Guest

    Default OT - Lymphangioleiomysomatosis

    Any of you in the health profession know about this? My SIL's SIL has
    been diagnosed and might need a lung transplant. She is the sweetest
    woman and I just can't believe the unfairness. They have two young
    children, too. I know it isn't about food but I'm just asking
    everywhere. They have an appt with a lung transplant specialist but I
    want to know if anyone knows the best. Anywhere.

  2. #2
    Bryan Guest

    Default Re: OT - Lymphangioleiomysomatosis

    On Jan 20, 7:38*pm, Cheryl <jlhsha...@hotmail.com> wrote:
    > Any of you in the health profession know about this? *My SIL's SIL has
    > been diagnosed and might need a lung transplant. She is the sweetest
    > woman and I just can't believe the unfairness. *They have two young
    > children, too. *I know it isn't about food but I'm just asking
    > everywhere. *They have an appt with a lung transplant specialist but I
    > want to know if anyone knows the best. Anywhere.


    "Life is unfair." I'm sure that there are few surgeons who do lung
    transplants, and the experienced ones are assisted by those who are
    learning. It is *very* likely that the surgeons will be competent.
    I'm a person who has paid more through my own and my employers'
    contributions into the system than I have used, but I am 100% fine
    with that. We should all feel that there for the grace of God--or
    dumb luck--go I. Anyone who is not filthy rich who is against the
    Patient Protection and Affordable Care Act is a fool. Perhaps your
    sister has good insurance, but imagine if she didn't. Would you want
    her to get lesser quality health care? Would you think that she
    *deserved* lesser quality health care?

    When it's our own loved one, we want the best, but if we extend the
    pool of loved ones to all Americans, we include all of us who might
    need health care. Selfishness is not a virtue.

    --Bryan

  3. #3
    Andy Guest

    Default Re: OT - Lymphangioleiomysomatosis

    Cheryl <[email protected]> wrote:

    > Any of you in the health profession know about this? My SIL's SIL has
    > been diagnosed and might need a lung transplant. She is the sweetest
    > woman and I just can't believe the unfairness. They have two young
    > children, too. I know it isn't about food but I'm just asking
    > everywhere. They have an appt with a lung transplant specialist but I
    > want to know if anyone knows the best. Anywhere.



    Cheryl,

    In my best Maxwell Smart (Agent 86) reply...

    "I know nothing!"


    What concerns me most is the use of SIL.

    Son-In-Law? Sister-In-Law?

    I say Sis-IL for clarity.

    Why SIL has gone on, on Usenet for so long bugs the heck out of me.

    Call me neurotic. My ILs do!

    Wishing you a knowledgeable reply!

    Best,

    Andy

  4. #4
    Steve Freides Guest

    Default Re: OT - Lymphangioleiomysomatosis

    Cheryl wrote:
    > Any of you in the health profession know about this? My SIL's SIL has
    > been diagnosed and might need a lung transplant. She is the sweetest
    > woman and I just can't believe the unfairness. They have two young
    > children, too. I know it isn't about food but I'm just asking
    > everywhere. They have an appt with a lung transplant specialist but I
    > want to know if anyone knows the best. Anywhere.


    I am not a health professional but I just learned a good deal by reading
    the Wiki:

    http://en.wikipedia.org/wiki/Lymphangioleiomyomatosis

    The spelling is slightly different that what you had but I assume it's
    the same thing.

    One supplement I'm aware of sounds like it has potential to be
    beneficial. Google the name Estrox - you'll find at least two different
    products; I am familiar with that made by Defense Nutrition. I take
    this. So does my wife, who is a breast cancer survivor - she says that
    her "markers," apparently numbers checked regularly by her cancer
    doctor, improved and have stayed improved since she started taking this
    supplement. My wife also takes, by prescription, Tamoxifen, which has,
    at least in general terms, the same goal, and which you'll find
    mentioned in the Wiki.

    Hope that's helpful to you - best luck to the woman who's hurting here
    for a full recovery by whatever means.

    -S-



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