Results 1 to 16 of 16

Thread: Low Citamin D ...again :(

  1. #1
    Jacquie Guest

    Default Low Citamin D ...again :(

    A couple of days ago got a call from my Primary Care , and was told my
    Vitamin D is pretty low...lower than last time, because I will be starting
    on twice the pills I was on the last time. I'm wondering if my sick
    Gallbladder was the cause of this, I read that the Gallbladder was
    responsible for absorbing certain vitamins and vitamin D was one. What do
    you think? Jeesh, I'm falling apart piece by piece....



  2. #2
    Jacquie Guest

    Default Re: Low Citamin D ...again :(

    That's Vitamin...I blame it on the drugs...LOL.
    "Jacquie" <[email protected]> wrote in message
    news:[email protected]..
    >A couple of days ago got a call from my Primary Care , and was told my
    >Vitamin D is pretty low...lower than last time, because I will be starting
    >on twice the pills I was on the last time. I'm wondering if my sick
    >Gallbladder was the cause of this, I read that the Gallbladder was
    >responsible for absorbing certain vitamins and vitamin D was one. What do
    >you think? Jeesh, I'm falling apart piece by piece....
    >
    >




  3. #3
    Julie Bove Guest

    Default Re: Low Citamin D ...again :(


    "Jacquie" <[email protected]> wrote in message
    news:[email protected]..
    >A couple of days ago got a call from my Primary Care , and was told my
    >Vitamin D is pretty low...lower than last time, because I will be starting
    >on twice the pills I was on the last time. I'm wondering if my sick
    >Gallbladder was the cause of this, I read that the Gallbladder was
    >responsible for absorbing certain vitamins and vitamin D was one. What do
    >you think? Jeesh, I'm falling apart piece by piece....


    Sorry to hear that. At least vitamin D doesn't cost too much.



  4. #4
    Jacquie Guest

    Default Re: Low Vitamin D ...again :(

    They prescribe them to me .. My number is 18 not sure what normal is.
    Tricare will pay for the vitamin D after I pay the $9.00 co pay..so no
    problem there.

    "Julie Bove" <[email protected]> wrote in message
    news:jt5von$af$[email protected]..
    >
    > "Jacquie" <[email protected]> wrote in message
    > news:[email protected]..
    >>A couple of days ago got a call from my Primary Care , and was told my
    >>Vitamin D is pretty low...lower than last time, because I will be starting
    >>on twice the pills I was on the last time. I'm wondering if my sick
    >>Gallbladder was the cause of this, I read that the Gallbladder was
    >>responsible for absorbing certain vitamins and vitamin D was one. What do
    >>you think? Jeesh, I'm falling apart piece by piece....

    >
    > Sorry to hear that. At least vitamin D doesn't cost too much.
    >
    >




  5. #5
    Julie Bove Guest

    Default Re: Low Vitamin D ...again :(


    "Jacquie" <[email protected]> wrote in message
    news:[email protected] m...
    > They prescribe them to me .. My number is 18 not sure what normal is.
    > Tricare will pay for the vitamin D after I pay the $9.00 co pay..so no
    > problem there.


    Have you tried the mail order? I think I might have to go to that soon.
    Not sure when husband is officially retired but he'll be home on Mon.



  6. #6
    Susan Guest

    Default Re: Low Citamin D ...again :(

    x-no-archive: yes

    On 7/6/2012 1:49 AM, Jacquie wrote:
    > A couple of days ago got a call from my Primary Care , and was told my
    > Vitamin D is pretty low...lower than last time, because I will be
    > starting on twice the pills I was on the last time. I'm wondering if my
    > sick Gallbladder was the cause of this, I read that the Gallbladder was
    > responsible for absorbing certain vitamins and vitamin D was one. What
    > do you think? Jeesh, I'm falling apart piece by piece....
    >


    It's extremely common in pituitary/adrenal disorder. Almost all the
    Cushing's patients I know have to take high dose vitamin D3 weekly.

    It's made/converted in the kidneys when all is working properly.

    Susan

  7. #7
    Susan Guest

    Default Re: Low Vitamin D ...again :(

    x-no-archive: yes

    On 7/6/2012 2:33 AM, Jacquie wrote:
    > They prescribe them to me .. My number is 18 not sure what normal is.
    > Tricare will pay for the vitamin D after I pay the $9.00 co pay..so no
    > problem there.


    The normal range is typically between 32-100, but you really don't want
    to be at the bottom of it.

    Feel better soon!

    Susan

  8. #8
    Colt T Guest

    Default Re: Low Vitamin D ...again :(

    The rx vit D is D2, the otc kind is D3 which is much better. Vit d is
    fat soluble so with no fat in your stomach when you take it it won't be
    absorbed.


  9. #9
    Jacquie Guest

    Default Re: Low Vitamin D ...again :(


    "Julie Bove" <[email protected]> wrote in message
    news:jt61t8$9n3$[email protected]..
    >
    > "Jacquie" <[email protected]> wrote in message
    > news:[email protected] m...
    >> They prescribe them to me .. My number is 18 not sure what normal is.
    >> Tricare will pay for the vitamin D after I pay the $9.00 co pay..so no
    >> problem there.

    >
    > Have you tried the mail order? I think I might have to go to that soon.
    > Not sure when husband is officially retired but he'll be home on Mon.
    >

    No I won't do the mail order because I live a mile and a half from my
    mailbox and some meds wouldn't be able to sit in 105 temps all day until my
    husband can stop and get it on the way home from work. Hubby has been
    retired from the AF for about 14-15 years. They keep on asking me to do mail
    order and I just ignore the letters. Once I am on Medicare(a few more years
    yet) I will get my meds on base. Right now we use the local grocery
    pharmacy, and I pay a $9.00 co-pay. Hubby makes enough money,
    that we can afford it now.


  10. #10
    Jacquie Guest

    Default Re: Low Vitamin D ...again :(


    "Susan" <[email protected]> wrote in message
    news:[email protected]..
    > x-no-archive: yes
    >
    > On 7/6/2012 2:33 AM, Jacquie wrote:
    >> They prescribe them to me .. My number is 18 not sure what normal is.
    >> Tricare will pay for the vitamin D after I pay the $9.00 co pay..so no
    >> problem there.

    >
    > The normal range is typically between 32-100, but you really don't want to
    > be at the bottom of it.
    >
    > Feel better soon!
    >
    > Susan

    Thanks Susan, this explains the muscle weakness and discomfort in my legs, I
    keep on blaming my arthritic knees but I think the low vitamin D is the
    culprit. I knew you would reply with the right numbers...wow, no wonder she
    is doubling the last dosage I had


  11. #11
    Jacquie Guest

    Default Re: Low Citamin D ...again :(


    "Susan" <[email protected]> wrote in message
    news:[email protected]..
    > x-no-archive: yes
    >
    > On 7/6/2012 1:49 AM, Jacquie wrote:
    >> A couple of days ago got a call from my Primary Care , and was told my
    >> Vitamin D is pretty low...lower than last time, because I will be
    >> starting on twice the pills I was on the last time. I'm wondering if my
    >> sick Gallbladder was the cause of this, I read that the Gallbladder was
    >> responsible for absorbing certain vitamins and vitamin D was one. What
    >> do you think? Jeesh, I'm falling apart piece by piece....
    >>

    >
    > It's extremely common in pituitary/adrenal disorder. Almost all the
    > Cushing's patients I know have to take high dose vitamin D3 weekly.
    >
    > It's made/converted in the kidneys when all is working properly.
    >
    > Susan

    I was just reading about a relationship of Vitamin D and Biliary cirrhosis.
    I
    The surgeon didn't tell what kind of cirrhosis I have but after reading
    about Primary Biliary cirrhosis , it sound like that might be it. Also
    sounds like maybe my gallbladder should have been taken a long time ago.
    This is the page I found this info on.
    http://www.livestrong.com/article/28...ary-cirrhosis/
    just in case you might want to check it out.


  12. #12
    Susan Guest

    Default Re: Low Vitamin D ...again :(

    x-no-archive: yes

    On 7/6/2012 4:52 PM, Jacquie wrote:

    > Thanks Susan, this explains the muscle weakness and discomfort in my
    > legs, I keep on blaming my arthritic knees but I think the low vitamin D
    > is the culprit. I knew you would reply with the right numbers...wow, no
    > wonder she is doubling the last dosage I had


    Wow, yes, the folks on the boards I read who are D deficient all have
    terrible muscle and joint aches and pains that go away with supplementation.

    In my endo's case, that means 50,000 iu once per week for 8 weeks, then
    re-test. To be honest, once folks go off, their D tends to plummet
    again. Here's the product:
    http://www.biotechpharmacal.com/cata...000-iu-v-caps/

    Vitamin D isn't really a vitamin, it's a type of steroid hormone. Hard
    to fight infections, cancer without it, or to maintain strong immunity
    in general.

    I think you have a bunch of pituitary adrenal stuff going on and may
    need a more comprehensive and thorough endocrinologist. Though living
    so far from your mailbox, it may be mighty slim pickings!

    Susan

  13. #13
    Jacquie Guest

    Default Re: Low Vitamin D ...again :(


    "Susan" <[email protected]> wrote in message
    news:[email protected]..
    > x-no-archive: yes
    >
    > On 7/6/2012 4:52 PM, Jacquie wrote:
    >
    >> Thanks Susan, this explains the muscle weakness and discomfort in my
    >> legs, I keep on blaming my arthritic knees but I think the low vitamin D
    >> is the culprit. I knew you would reply with the right numbers...wow, no
    >> wonder she is doubling the last dosage I had

    >
    > Wow, yes, the folks on the boards I read who are D deficient all have
    > terrible muscle and joint aches and pains that go away with
    > supplementation.
    >
    > In my endo's case, that means 50,000 iu once per week for 8 weeks, then
    > re-test. To be honest, once folks go off, their D tends to plummet again.
    > Here's the product:
    > http://www.biotechpharmacal.com/cata...000-iu-v-caps/
    >
    > Vitamin D isn't really a vitamin, it's a type of steroid hormone. Hard to
    > fight infections, cancer without it, or to maintain strong immunity in
    > general.
    >
    > I think you have a bunch of pituitary adrenal stuff going on and may need
    > a more comprehensive and thorough endocrinologist. Though living so far
    > from your mailbox, it may be mighty slim pickings!
    >
    > Susan
    >

    One thing going for me is we live by a Retirement town(about 12-15 miles
    away), they have all kinds of Dr's. Just hopefully I can find a good endo.
    They had me on the 50,000IU the last time I was on it...she is doubling it
    from what I understand , we are going grocery shopping tomorrow and will pu
    up the prescription then. Well maybe if my lack of vitamin D was just from
    not being in the sun maybe it would stay up at least for a while, but I'm
    pretty sure all of these late problems are related in someway to that very
    sick gallbladder. I had my first inkling of a gallbladder problem was about
    12 years ago and the pain was minimal and with a pain pill it went
    away.Through the 12 years it would crop up again and again. Then a few years
    back after having a vaginal wand check, and ultra sound for my ovaries ,
    they have to do an ultra sound of the body cavity to make sure holding urine
    did not cause harm...that's when they spotted the stones. Dr talked about
    getting the surgery done, and then she got shipped to the middle east and
    the conversation got forgotten, so I had a few more attacks which always did
    fine with a pain pill...until the last one. The gallbladder was very
    sick...as I mentioned the Dr. said it was the biggest gallbladder, most
    inflamed he had ever removed. So during those years of attacks it was
    getting sicker when in turn probably damaged my liver a bit...hence the
    cirrhosis. I was so shocked when he said that because I am not a drinker...a
    glass of wine once every 6 months or so. I'm sure my obesity probably had
    some to do with it, as you know it is something I fight constantly...on with
    the fight. He also specializes in Bariatric surgery at the teaching
    hospital. I told Wayne that when I go in for my follow up and he mentions
    another surgery I am going to sock him in the nose...LOL.



  14. #14
    Julie Bove Guest

    Default Re: Low Vitamin D ...again :(


    "Jacquie" <[email protected]> wrote in message
    news:[email protected] m...
    >
    > "Julie Bove" <[email protected]> wrote in message
    > news:jt61t8$9n3$[email protected]..
    >>
    >> "Jacquie" <[email protected]> wrote in message
    >> news:[email protected] m...
    >>> They prescribe them to me .. My number is 18 not sure what normal is.
    >>> Tricare will pay for the vitamin D after I pay the $9.00 co pay..so no
    >>> problem there.

    >>
    >> Have you tried the mail order? I think I might have to go to that soon.
    >> Not sure when husband is officially retired but he'll be home on Mon.
    >>

    > No I won't do the mail order because I live a mile and a half from my
    > mailbox and some meds wouldn't be able to sit in 105 temps all day until
    > my husband can stop and get it on the way home from work. Hubby has been
    > retired from the AF for about 14-15 years. They keep on asking me to do
    > mail order and I just ignore the letters. Once I am on Medicare(a few more
    > years yet) I will get my meds on base. Right now we use the local grocery
    > pharmacy, and I pay a $9.00 co-pay. Hubby makes enough money,
    > that we can afford it now.


    Yeah, that's my worry too. Not so much the heat although I do know that is
    a concern. I used to have to get Maui's meds through the mail and the cold
    pack they put in there just wasn't effective. Her meds became inactive if
    they got too warm and I could always tell by her vomiting when they had.
    That got very expensive.

    I worry about my insulin. Will it freeze? What if it gets too warm? I
    have no idea where the meds come from. But I have a feeling I will have to
    go that route soon. Husband will be home on Mon. I don't know when his
    official retirement date is or when they start the new insurance. Right now
    everything is free for us.



  15. #15
    Evelyn Guest

    Default Re: Low Citamin D ...again :(

    On Fri, 6 Jul 2012 14:03:51 -0700, "Jacquie"
    <[email protected]> wrote:

    >
    >"Susan" <[email protected]> wrote in message
    >news:[email protected]..
    >> x-no-archive: yes
    >>
    >> On 7/6/2012 1:49 AM, Jacquie wrote:
    >>> A couple of days ago got a call from my Primary Care , and was told my
    >>> Vitamin D is pretty low...lower than last time, because I will be
    >>> starting on twice the pills I was on the last time. I'm wondering if my
    >>> sick Gallbladder was the cause of this, I read that the Gallbladder was
    >>> responsible for absorbing certain vitamins and vitamin D was one. What
    >>> do you think? Jeesh, I'm falling apart piece by piece....
    >>>

    >>
    >> It's extremely common in pituitary/adrenal disorder. Almost all the
    >> Cushing's patients I know have to take high dose vitamin D3 weekly.
    >>
    >> It's made/converted in the kidneys when all is working properly.
    >>
    >> Susan

    >I was just reading about a relationship of Vitamin D and Biliary cirrhosis.
    >I
    >The surgeon didn't tell what kind of cirrhosis I have but after reading
    >about Primary Biliary cirrhosis , it sound like that might be it. Also
    >sounds like maybe my gallbladder should have been taken a long time ago.
    >This is the page I found this info on.
    >http://www.livestrong.com/article/28...ary-cirrhosis/
    >just in case you might want to check it out.



    So many people will tolerate having a bad gall bladder for years. I
    woman I know refused to get hers out for so long it finally began to
    infect and could have killed her.

    My doc has me on a special kind of vitamin d. It is called
    calcitriol. Apparently it is already in the form ones body converts
    it to, bypassing the organs that ordinarily convert it. I must say
    that since I am on it, I feel better, but that could be due to a lot
    of reasons.

    Evelyn

  16. #16
    Susan Guest

    Default Re: Low Vitamin D ...again :(

    x-no-archive: yes

    On 7/6/2012 11:00 PM, Jacquie wrote:

    > One thing going for me is we live by a Retirement town(about 12-15 miles
    > away), they have all kinds of Dr's. Just hopefully I can find a good
    > endo. They had me on the 50,000IU the last time I was on it...she is
    > doubling it from what I understand , we are going grocery shopping
    > tomorrow and will pu up the prescription then. Well maybe if my lack of
    > vitamin D was just from not being in the sun maybe it would stay up at
    > least for a while, but I'm pretty sure all of these late problems are
    > related in someway to that very sick gallbladder.


    I can't tell you how many Cushing's patients have gall bladder issues,
    fatty liver, and almost all have vit D deficiency. IMO, you'd be better
    off with cheap D3 gel caps from the drug store than with the D2, if
    that's what's being rx'ed for you. Often, the deficiency is caused by
    failure to convert D2 to the active D3 form. OTC is probably cheaper
    than your co-pay. :-)

    I had my first inkling
    > of a gallbladder problem was about 12 years ago and the pain was minimal
    > and with a pain pill it went away.Through the 12 years it would crop up
    > again and again. Then a few years back after having a vaginal wand
    > check, and ultra sound for my ovaries , they have to do an ultra sound
    > of the body cavity to make sure holding urine did not cause
    > harm...that's when they spotted the stones. Dr talked about getting the
    > surgery done, and then she got shipped to the middle east and the
    > conversation got forgotten, so I had a few more attacks which always did
    > fine with a pain pill...until the last one. The gallbladder was very
    > sick...as I mentioned the Dr. said it was the biggest gallbladder, most
    > inflamed he had ever removed. So during those years of attacks it was
    > getting sicker when in turn probably damaged my liver a bit...hence the
    > cirrhosis. I was so shocked when he said that because I am not a
    > drinker...a glass of wine once every 6 months or so. I'm sure my obesity
    > probably had some to do with it, as you know it is something I fight
    > constantly...on with the fight. He also specializes in Bariatric surgery
    > at the teaching hospital. I told Wayne that when I go in for my follow
    > up and he mentions another surgery I am going to sock him in the
    > nose...LOL.
    >


    If you're not low carbing now, I urge you to do so to aid your liver.
    Also, metformin made me adrenally messed up and gave me elevated liver
    enzymes. Both alpha lipoic acid and silymarin have demonstrated good
    effect, even very rapid, on liver damage. But without cutting carbs,
    you're going to keep over producing/converting fat for storage. Many
    folks with adrenal disorders develop fatty liver and have difficulty
    controlling triglycerides even on low carb, but it's the best shot you
    have of improving it.

    Hope your healing progresses well.

    Susan

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •  

1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32