Thread: Low Citamin D ...again :(

That's Vitamin...I blame it on the drugs...LOL.
"Jacquie" <[email protected]> wrote in message
news:[email protected]..
>A couple of days ago got a call from my Primary Care , and was told my
>Vitamin D is pretty low...lower than last time, because I will be starting
>on twice the pills I was on the last time. I'm wondering if my sick
>Gallbladder was the cause of this, I read that the Gallbladder was
>responsible for absorbing certain vitamins and vitamin D was one. What do
>you think? Jeesh, I'm falling apart piece by piece....
>
>

"Jacquie" <[email protected]> wrote in message
news:[email protected]..
>A couple of days ago got a call from my Primary Care , and was told my
>Vitamin D is pretty low...lower than last time, because I will be starting
>on twice the pills I was on the last time. I'm wondering if my sick
>Gallbladder was the cause of this, I read that the Gallbladder was
>responsible for absorbing certain vitamins and vitamin D was one. What do
>you think? Jeesh, I'm falling apart piece by piece....

Sorry to hear that. At least vitamin D doesn't cost too much.

They prescribe them to me .. My number is 18 not sure what normal is.
Tricare will pay for the vitamin D after I pay the $9.00 co pay..so no
problem there.

"Julie Bove" <[email protected]> wrote in message
news:jt5von$af$[email protected]..
>
> "Jacquie" <[email protected]> wrote in message
> news:[email protected]..
>>A couple of days ago got a call from my Primary Care , and was told my
>>Vitamin D is pretty low...lower than last time, because I will be starting
>>on twice the pills I was on the last time. I'm wondering if my sick
>>Gallbladder was the cause of this, I read that the Gallbladder was
>>responsible for absorbing certain vitamins and vitamin D was one. What do
>>you think? Jeesh, I'm falling apart piece by piece....
>
> Sorry to hear that. At least vitamin D doesn't cost too much.
>
>

"Jacquie" <[email protected]> wrote in message
news:[email protected] m...
> They prescribe them to me .. My number is 18 not sure what normal is.
> Tricare will pay for the vitamin D after I pay the $9.00 co pay..so no
> problem there.

Have you tried the mail order? I think I might have to go to that soon.
Not sure when husband is officially retired but he'll be home on Mon.

x-no-archive: yes

On 7/6/2012 1:49 AM, Jacquie wrote:
> A couple of days ago got a call from my Primary Care , and was told my
> Vitamin D is pretty low...lower than last time, because I will be
> starting on twice the pills I was on the last time. I'm wondering if my
> sick Gallbladder was the cause of this, I read that the Gallbladder was
> responsible for absorbing certain vitamins and vitamin D was one. What
> do you think? Jeesh, I'm falling apart piece by piece....
>

It's extremely common in pituitary/adrenal disorder. Almost all the
Cushing's patients I know have to take high dose vitamin D3 weekly.

It's made/converted in the kidneys when all is working properly.

Susan

x-no-archive: yes

On 7/6/2012 2:33 AM, Jacquie wrote:
> They prescribe them to me .. My number is 18 not sure what normal is.
> Tricare will pay for the vitamin D after I pay the $9.00 co pay..so no
> problem there.

The normal range is typically between 32-100, but you really don't want
to be at the bottom of it.

Feel better soon!

Susan

The rx vit D is D2, the otc kind is D3 which is much better. Vit d is
fat soluble so with no fat in your stomach when you take it it won't be
absorbed.

"Julie Bove" <[email protected]> wrote in message
news:jt61t8$9n3$[email protected]..
>
> "Jacquie" <[email protected]> wrote in message
> news:[email protected] m...
>> They prescribe them to me .. My number is 18 not sure what normal is.
>> Tricare will pay for the vitamin D after I pay the $9.00 co pay..so no
>> problem there.
>
> Have you tried the mail order? I think I might have to go to that soon.
> Not sure when husband is officially retired but he'll be home on Mon.
>
No I won't do the mail order because I live a mile and a half from my
mailbox and some meds wouldn't be able to sit in 105 temps all day until my
husband can stop and get it on the way home from work. Hubby has been
retired from the AF for about 14-15 years. They keep on asking me to do mail
order and I just ignore the letters. Once I am on Medicare(a few more years
yet) I will get my meds on base. Right now we use the local grocery
pharmacy, and I pay a $9.00 co-pay. Hubby makes enough money,
that we can afford it now.

"Susan" <[email protected]> wrote in message
news:[email protected]..
> x-no-archive: yes
>
> On 7/6/2012 2:33 AM, Jacquie wrote:
>> They prescribe them to me .. My number is 18 not sure what normal is.
>> Tricare will pay for the vitamin D after I pay the $9.00 co pay..so no
>> problem there.
>
> The normal range is typically between 32-100, but you really don't want to
> be at the bottom of it.
>
> Feel better soon!
>
> Susan
Thanks Susan, this explains the muscle weakness and discomfort in my legs, I
keep on blaming my arthritic knees but I think the low vitamin D is the
culprit. I knew you would reply with the right numbers...wow, no wonder she
is doubling the last dosage I had

"Susan" <[email protected]> wrote in message
news:[email protected]..
> x-no-archive: yes
>
> On 7/6/2012 1:49 AM, Jacquie wrote:
>> A couple of days ago got a call from my Primary Care , and was told my
>> Vitamin D is pretty low...lower than last time, because I will be
>> starting on twice the pills I was on the last time. I'm wondering if my
>> sick Gallbladder was the cause of this, I read that the Gallbladder was
>> responsible for absorbing certain vitamins and vitamin D was one. What
>> do you think? Jeesh, I'm falling apart piece by piece....
>>
>
> It's extremely common in pituitary/adrenal disorder. Almost all the
> Cushing's patients I know have to take high dose vitamin D3 weekly.
>
> It's made/converted in the kidneys when all is working properly.
>
> Susan
I was just reading about a relationship of Vitamin D and Biliary cirrhosis.
I
The surgeon didn't tell what kind of cirrhosis I have but after reading
about Primary Biliary cirrhosis , it sound like that might be it. Also
sounds like maybe my gallbladder should have been taken a long time ago.
This is the page I found this info on.
http://www.livestrong.com/article/28...ary-cirrhosis/
just in case you might want to check it out.

x-no-archive: yes

On 7/6/2012 4:52 PM, Jacquie wrote:

> Thanks Susan, this explains the muscle weakness and discomfort in my
> legs, I keep on blaming my arthritic knees but I think the low vitamin D
> is the culprit. I knew you would reply with the right numbers...wow, no
> wonder she is doubling the last dosage I had

Wow, yes, the folks on the boards I read who are D deficient all have
terrible muscle and joint aches and pains that go away with supplementation.

In my endo's case, that means 50,000 iu once per week for 8 weeks, then
re-test. To be honest, once folks go off, their D tends to plummet
again. Here's the product:
http://www.biotechpharmacal.com/cata...000-iu-v-caps/

Vitamin D isn't really a vitamin, it's a type of steroid hormone. Hard
to fight infections, cancer without it, or to maintain strong immunity
in general.

I think you have a bunch of pituitary adrenal stuff going on and may
need a more comprehensive and thorough endocrinologist. Though living
so far from your mailbox, it may be mighty slim pickings!

Susan

"Susan" <[email protected]> wrote in message
news:[email protected]..
> x-no-archive: yes
>
> On 7/6/2012 4:52 PM, Jacquie wrote:
>
>> Thanks Susan, this explains the muscle weakness and discomfort in my
>> legs, I keep on blaming my arthritic knees but I think the low vitamin D
>> is the culprit. I knew you would reply with the right numbers...wow, no
>> wonder she is doubling the last dosage I had
>
> Wow, yes, the folks on the boards I read who are D deficient all have
> terrible muscle and joint aches and pains that go away with
> supplementation.
>
> In my endo's case, that means 50,000 iu once per week for 8 weeks, then
> re-test. To be honest, once folks go off, their D tends to plummet again.
> Here's the product:
> http://www.biotechpharmacal.com/cata...000-iu-v-caps/
>
> Vitamin D isn't really a vitamin, it's a type of steroid hormone. Hard to
> fight infections, cancer without it, or to maintain strong immunity in
> general.
>
> I think you have a bunch of pituitary adrenal stuff going on and may need
> a more comprehensive and thorough endocrinologist. Though living so far
> from your mailbox, it may be mighty slim pickings!
>
> Susan
>
One thing going for me is we live by a Retirement town(about 12-15 miles
away), they have all kinds of Dr's. Just hopefully I can find a good endo.
They had me on the 50,000IU the last time I was on it...she is doubling it
from what I understand , we are going grocery shopping tomorrow and will pu
up the prescription then. Well maybe if my lack of vitamin D was just from
not being in the sun maybe it would stay up at least for a while, but I'm
pretty sure all of these late problems are related in someway to that very
sick gallbladder. I had my first inkling of a gallbladder problem was about
12 years ago and the pain was minimal and with a pain pill it went
away.Through the 12 years it would crop up again and again. Then a few years
back after having a vaginal wand check, and ultra sound for my ovaries ,
they have to do an ultra sound of the body cavity to make sure holding urine
did not cause harm...that's when they spotted the stones. Dr talked about
getting the surgery done, and then she got shipped to the middle east and
the conversation got forgotten, so I had a few more attacks which always did
fine with a pain pill...until the last one. The gallbladder was very
sick...as I mentioned the Dr. said it was the biggest gallbladder, most
inflamed he had ever removed. So during those years of attacks it was
getting sicker when in turn probably damaged my liver a bit...hence the
cirrhosis. I was so shocked when he said that because I am not a drinker...a
glass of wine once every 6 months or so. I'm sure my obesity probably had
some to do with it, as you know it is something I fight constantly...on with
the fight. He also specializes in Bariatric surgery at the teaching
hospital. I told Wayne that when I go in for my follow up and he mentions
another surgery I am going to sock him in the nose...LOL.

"Jacquie" <[email protected]> wrote in message
news:[email protected] m...
>
> "Julie Bove" <[email protected]> wrote in message
> news:jt61t8$9n3$[email protected]..
>>
>> "Jacquie" <[email protected]> wrote in message
>> news:[email protected] m...
>>> They prescribe them to me .. My number is 18 not sure what normal is.
>>> Tricare will pay for the vitamin D after I pay the $9.00 co pay..so no
>>> problem there.
>>
>> Have you tried the mail order? I think I might have to go to that soon.
>> Not sure when husband is officially retired but he'll be home on Mon.
>>
> No I won't do the mail order because I live a mile and a half from my
> mailbox and some meds wouldn't be able to sit in 105 temps all day until
> my husband can stop and get it on the way home from work. Hubby has been
> retired from the AF for about 14-15 years. They keep on asking me to do
> mail order and I just ignore the letters. Once I am on Medicare(a few more
> years yet) I will get my meds on base. Right now we use the local grocery
> pharmacy, and I pay a $9.00 co-pay. Hubby makes enough money,
> that we can afford it now.

Yeah, that's my worry too. Not so much the heat although I do know that is
a concern. I used to have to get Maui's meds through the mail and the cold
pack they put in there just wasn't effective. Her meds became inactive if
they got too warm and I could always tell by her vomiting when they had.
That got very expensive.

I worry about my insulin. Will it freeze? What if it gets too warm? I
have no idea where the meds come from. But I have a feeling I will have to
go that route soon. Husband will be home on Mon. I don't know when his
official retirement date is or when they start the new insurance. Right now
everything is free for us.

On Fri, 6 Jul 2012 14:03:51 -0700, "Jacquie"
<[email protected]> wrote:

>
>"Susan" <[email protected]> wrote in message
>news:[email protected]..
>> x-no-archive: yes
>>
>> On 7/6/2012 1:49 AM, Jacquie wrote:
>>> A couple of days ago got a call from my Primary Care , and was told my
>>> Vitamin D is pretty low...lower than last time, because I will be
>>> starting on twice the pills I was on the last time. I'm wondering if my
>>> sick Gallbladder was the cause of this, I read that the Gallbladder was
>>> responsible for absorbing certain vitamins and vitamin D was one. What
>>> do you think? Jeesh, I'm falling apart piece by piece....
>>>
>>
>> It's extremely common in pituitary/adrenal disorder. Almost all the
>> Cushing's patients I know have to take high dose vitamin D3 weekly.
>>
>> It's made/converted in the kidneys when all is working properly.
>>
>> Susan
>I was just reading about a relationship of Vitamin D and Biliary cirrhosis.
>I
>The surgeon didn't tell what kind of cirrhosis I have but after reading
>about Primary Biliary cirrhosis , it sound like that might be it. Also
>sounds like maybe my gallbladder should have been taken a long time ago.
>This is the page I found this info on.
>http://www.livestrong.com/article/28...ary-cirrhosis/
>just in case you might want to check it out.


So many people will tolerate having a bad gall bladder for years. I
woman I know refused to get hers out for so long it finally began to
infect and could have killed her.

My doc has me on a special kind of vitamin d. It is called
calcitriol. Apparently it is already in the form ones body converts
it to, bypassing the organs that ordinarily convert it. I must say
that since I am on it, I feel better, but that could be due to a lot
of reasons.

Evelyn

x-no-archive: yes

On 7/6/2012 11:00 PM, Jacquie wrote:

> One thing going for me is we live by a Retirement town(about 12-15 miles
> away), they have all kinds of Dr's. Just hopefully I can find a good
> endo. They had me on the 50,000IU the last time I was on it...she is
> doubling it from what I understand , we are going grocery shopping
> tomorrow and will pu up the prescription then. Well maybe if my lack of
> vitamin D was just from not being in the sun maybe it would stay up at
> least for a while, but I'm pretty sure all of these late problems are
> related in someway to that very sick gallbladder.

I can't tell you how many Cushing's patients have gall bladder issues,
fatty liver, and almost all have vit D deficiency. IMO, you'd be better
off with cheap D3 gel caps from the drug store than with the D2, if
that's what's being rx'ed for you. Often, the deficiency is caused by
failure to convert D2 to the active D3 form. OTC is probably cheaper
than your co-pay. :-)

I had my first inkling
> of a gallbladder problem was about 12 years ago and the pain was minimal
> and with a pain pill it went away.Through the 12 years it would crop up
> again and again. Then a few years back after having a vaginal wand
> check, and ultra sound for my ovaries , they have to do an ultra sound
> of the body cavity to make sure holding urine did not cause
> harm...that's when they spotted the stones. Dr talked about getting the
> surgery done, and then she got shipped to the middle east and the
> conversation got forgotten, so I had a few more attacks which always did
> fine with a pain pill...until the last one. The gallbladder was very
> sick...as I mentioned the Dr. said it was the biggest gallbladder, most
> inflamed he had ever removed. So during those years of attacks it was
> getting sicker when in turn probably damaged my liver a bit...hence the
> cirrhosis. I was so shocked when he said that because I am not a
> drinker...a glass of wine once every 6 months or so. I'm sure my obesity
> probably had some to do with it, as you know it is something I fight
> constantly...on with the fight. He also specializes in Bariatric surgery
> at the teaching hospital. I told Wayne that when I go in for my follow
> up and he mentions another surgery I am going to sock him in the
> nose...LOL.
>

If you're not low carbing now, I urge you to do so to aid your liver.
Also, metformin made me adrenally messed up and gave me elevated liver
enzymes. Both alpha lipoic acid and silymarin have demonstrated good
effect, even very rapid, on liver damage. But without cutting carbs,
you're going to keep over producing/converting fat for storage. Many
folks with adrenal disorders develop fatty liver and have difficulty
controlling triglycerides even on low carb, but it's the best shot you
have of improving it.

Hope your healing progresses well.

Susan